The principal aim of the DYSCERNE project is to create a European Network of Centres of Expertise for dysmorphology. This Network will capture complementary expertise, improve standards in diagnosis and management, facilitate patients’ access to rare disease services, and act as a model for other networks of expertise.
A Network Launch meeting was held in October 2007. At this event the objectives of the Network were consolidated, the Partners’ individual responsibilities decided, and potential Network members identified. Subsequently, 83 experts in dysmorphology from 30 European countries have been invited to join the Network either as members of an expert review panel or as ‘nodes’ through which cases will be submitted.